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A reflection on ethical and methodological challenges of using separate interviews with adolescent-older carer dyads in rural South Africa.

dc.contributor.authorGumede, Dumileen_US
dc.contributor.authorNgwenya, Nothando B.en_US
dc.contributor.authorNamukwaya, Stellaen_US
dc.contributor.authorBernays, Sarahen_US
dc.contributor.authorSeeley, Janeten_US
dc.date.accessioned2022-11-07T07:46:25Z
dc.date.available2022-11-07T07:46:25Z
dc.date.issued2019-07-08
dc.date.updated2022-10-26T14:01:59Z
dc.description.abstractThis article discusses our reflections on ethical and methodological challenges when conducting separate interviews with individuals in dyads in the uMkhanyakude district, South Africa. Our work is embedded in an ethnographic study exploring care relationships between adolescents and their older carers in the context of a large-donor funded HIV programme. We use these reflections to discuss some of the challenges and present possible management strategies that may be adopted in conducting dyadic health research in resource-poor settings.<h4>Methods</h4>Drawing from the relational agency, three rounds of separate interviews and participant observation were undertaken with dyads of adolescents aged between 13 and 19 and their older carers aged 50+ from October 2017 to September 2018. A reflexive journal was kept to record the interviewer's experiences of the whole research process. We identified methodological and ethical challenges from these data during the thematic analysis.<h4>Results</h4>A total of 36 separate interviews were conducted with six pairs of adolescent-older carer dyads (n = 12 participants). Five themes emerged: recruitment of dyads, consenting dyads, confidentiality, conducting separate interviews with adolescents and older carers, and interviewer-dyad interaction. We also illustrated how we dealt with these challenges.<h4>Conclusions</h4>Results from this study can guide the recruitment, consenting and collecting data for health studies that employ a similar form of enquiry in LMICs. However, ethical and methodological challenges should be recognised as features of the relationships between cross-generation dyads rather than weaknesses of the method.en_US
dc.format.extent12 pen_US
dc.format.mediumElectronic
dc.identifier.citationGumede, D., Ngwenya, N.B., Namukwaya, S., Bernays, S. and Seeley, J. 2019. A reflection on ethical and methodological challenges of using separate interviews with adolescent-older carer dyads in rural South Africa. BMC medical ethics. 20(1): 47-. doi:10.1186/s12910-019-0383-9en_US
dc.identifier.doi10.1186/s12910-019-0383-9
dc.identifier.issn1472-6939 (Online)
dc.identifier.otherpubmed: 31286952
dc.identifier.otherpmc: PMC6615300
dc.identifier.urihttps://hdl.handle.net/10321/4498
dc.language.isoenen_US
dc.publisherSpringer Science and Business Media LLCen_US
dc.relation.ispartofBMC medical ethics; Vol. 20, Issue 1en_US
dc.subjectAdolescentsen_US
dc.subjectConfidentialityen_US
dc.subjectDyadsen_US
dc.subjectEthicsen_US
dc.subjectOlder carersen_US
dc.subjectSeparate interviewsen_US
dc.subject2201 Applied Ethicsen_US
dc.subjectApplied Ethicsen_US
dc.subject.meshHumans
dc.subject.meshHIV Infections
dc.subject.meshParents
dc.subject.meshConfidentiality
dc.subject.meshPatient Selection
dc.subject.meshInformed Consent
dc.subject.meshEthics, Research
dc.subject.meshAdolescent
dc.subject.meshMiddle Aged
dc.subject.meshRural Population
dc.subject.meshSouth Africa
dc.subject.meshFemale
dc.subject.meshMale
dc.subject.meshInterviews as Topic
dc.subject.meshYoung Adult
dc.subject.meshAdolescent
dc.subject.meshConfidentiality
dc.subject.meshEthics, Research
dc.subject.meshFemale
dc.subject.meshHIV Infections
dc.subject.meshHumans
dc.subject.meshInformed Consent
dc.subject.meshInterviews as Topic
dc.subject.meshMale
dc.subject.meshMiddle Aged
dc.subject.meshParents
dc.subject.meshPatient Selection
dc.subject.meshRural Population
dc.subject.meshSouth Africa
dc.subject.meshYoung Adult
dc.titleA reflection on ethical and methodological challenges of using separate interviews with adolescent-older carer dyads in rural South Africa.en_US
dc.typeArticleen_US
dcterms.dateAccepted2019-6-19
local.sdgSDG03

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